#FightEB so Beata's son can have a better future

Beata Faitli

Target: £20,000.00

Raised:£0.00

0%

Start Date: 01-Jan-2018

End Date: 28-Feb-2018

About my fundraising

When you're expecting your first child, people always say your life will change forever.

Beata, who worked as a nurse at a London hospital, didn't realise how true this was until her son, James, was born.

The skin was missing from both of James' legs.

'He was in so much pain. He couldn't feed. He was crying so much and we couldn't console him,' Beata remembers.

Doctors confirmed that James had Epidermolysis Bullosa (EB) - a potentially fatal skin condition that causes constant pain due to unstoppable internal and external blistering. In spite of her medical training, Beata knew nothing about EB.

The following weeks passed in a whirlwind of shock.

With support from specialist EB nurses, Beata learned how to look after his skin.

'I learned to do his dressi...more more

P.S. When you make a donation, don't forget to check the Gift Aid box if you're a UK taxpayer as then your charity can claim an extra 25% from the government!

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My fundraising page is raising money for #FightEB

About this charity

DEBRA is the national charity supporting those directly affected by, and working with, Epidermolys...more

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Top group fundraisers

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    Target: £20,000.00 Progress: £1,765.00
  • James Dunn

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    Meet 24-year-old James Dunn is 24; he is terminally ill and determined to live life to the full. James suffers from Epidermolysis Bullosa (EB) - a

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  • Andy Neale

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    Kathleen and I are doing a 35km (21 mile) walk on 12th May on behalf of DEBRA charity to raise awareness of the genetic skin condition EB; for which

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  • Heather & Wendy Skerry

    #FightEB so future generations don't have to suffer like Heather

    You've worked your way through college. You've got yourself a job. And you're making plans to move into your own place. Then you're diagnosed with

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