#FightEB so Beata's son can have a better future

Beata Faitli

Target: £20,000.00



Start Date: 01-Jan-2018

End Date: 31-Dec-2018

About my fundraising

When you're expecting your first child, people always say your life will change forever.

Beata, who worked as a nurse at a London hospital, didn't realise how true this was until her son, James, was born.

The skin was missing from both of James' legs.

'He was in so much pain. He couldn't feed. He was crying so much and we couldn't console him,' Beata remembers.

Doctors confirmed that James had Epidermolysis Bullosa (EB) - a potentially fatal skin condition that causes constant pain due to unstoppable internal and external blistering. In spite of her medical training, Beata knew nothing about EB.

The following weeks passed in a whirlwind of shock.

With support from specialist EB nurses, Beata learned how to look after his skin.

'I learned to do his dressi...more more

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My fundraising page is raising money for DebRA

About this charity

DEBRA is the national charity supporting those directly affected by, and working with, Epidermolys...more

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