Why do we need to raise funds? 30,000 babies are born each year in the UK with a genetic disorder thats one baby in every 25. There are over 4,500 recognised genetic disorders, some of which have no current treatment. Together they account for more than half of all childhood deaths in the UK. We raise money to fund care and support for affected children and their families, as well as long term research into the causes and cures of these conditions.