About my fundraising
I must be mad but I have decided to do a Sky Dive from 15,000 feet, the idea came about after attending a family fun day for Goldenhar with my 3yr old daughter who is affected by this rare syndrome run by Goldenhar Family Support Uk (the only charity for this syndrome) and seeing how much a benefit it is to the family's and most importantly those affected.
The charity relys soley on fundraising to keep the family's coming together on a yearly basis, offering advice, support & much needed confidence those affected with disfigurement through the syndrome.
Goldenhar is an 'umbrella' term for a wide range of abnormalities affecting the face and sometimes the vertebrae.
More about the syndrome & charity can be found at: www.goldenhar.org.uk
I am hoping to raise enough sponsor to do the jump by November in Durham.
Thank-you for your support. Simon
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