Primary Immunodeficiency Association
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About Primary Immunodeficiency Association
The Primary Immunodeficiency Association (PiA) is the only UK-wide charity representing the interests of over 5,000 children and adults suffering from serious inherited disorders of the immune system. Mostly genetically based, primary immunodeficiencies are treatable, but as yet, often not curable. The World Health Organisation recognises over 100 of these chronic conditions, which range in severity from life-limiting to life-threatening. The PiA aims to promote awareness and early diagnosis; ensure access to the best possible treatment; provide information, advice and dedicated support, including specialist literature, out of hours helpline, website and discussion forum, outreach activities for children and young people, regular newsletters, and on-going educational programmes; encourage and fund original research through investment in cutting edge treatments, including gene therapy and bone marrow transplantation for children.
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1) PROTECT AND PRESERVE THE HEALTH AND PROMOTE THE MEDICAL AND SOCIAL WELFARE OF PERSONS (AND MEMBERS OF THEIR IMMEDIATE FAMILIES) SUFFERING FROM THE PRIMARY IMMUNE DEFICIENCIES. 2) ADVANCE EDUCATION OF THESE CONDITIONS WITHIN THE MEDICAL PROFESSION, AMONG PATIENTS AND THEIR FAMILIES, AND THE GENERAL PUBLIC. 3) PROMOTE IMPROVEMENTS IN DIAGNOSIS AND PROVISION FOR MEDICAL TREATMENT. 4) ENCOURAGE AND SUPPORT APPROPRIATE RESEARCH INTO THE DIAGNOSIS AND TREATMENT OF THESE CONDITIONS AND ANY OTHER ISSUES AFFECTING THE WELFARE OF PATIENTS WITH THESE PRIMARY IMMUNE DEFICIENCIES AND PUBLISH THE USEFUL RESULTS THEREOF.